My work focuses on enabling people to access and use their health and personal data. I explore methods for sharing tools, ideas, and data to advance individual understanding, collective empowerment, and research. This work occurs through Open Humans and its associated nonprofit, and with the Peer Produced Research Lab at the CRI. My past experience and research has included work in genomics and biotechnology, bioethics, digital technology and advocacy, as well as participatory and participant-centered research.
I am Executive Director and President of Open Humans Foundation and co-founder of Open Humans, and Affiliate Faculty at the CRI. I live in San Diego, but most of my work is online with collaborators across North America and Europe.